Friday, September 4, 2009

update


Reuben's oncologist called last night with his pathology results and we have decisions to make. The tumor/healthy cells margins were there (Hallelujah!), but very slim (1 mm) near his major nerves, and that is apparently too close for comfort, so amputation and growth-stopping local radiation are not yet off the table. Consultations and such for the next week. It's complicated, and the Thursday afternoon solid tumor conference at CHOP was "extraordinarily conflicted" about what to do. So my good folks there will ask everyone they know, which will luckily include the other best-in-the-field sorts and hopefully the path will be clear. That is always my prayer: "Heavenly Father, please make our decisions clear. Please help me feel peaceful." I'm not honestly sure how much the heavens intercede in our physical battles (though I add that, too: "Lord, this is a good little boy, a joyful little boy, and keeping him around will be a good thing for your world."), but I know the strength I get in my spiritual ones. Thanks for including us in your own supplications. It means the world to me.

And a must-share: I got as far as tracing a pattern for a kimono top for my post-surgery boy, but Sally and Stephanie got much farther, much quicker, and since each got a couple of days wear (plus Sally's is reversible), I was able to get through the heavy-dressing days in style and without laundry. Thank you, angels who sew!I love the new Steffistuff labels, by the way (and check out the cute new playsets she's come up with lately in her etsy shop; we are definitely doing Christmas projects together this year!). Oh, etsy, I miss you...

6 comments:

sallyavena said...

What a cute grin! I'm glad it fit (or hoped it fit--it's hard to tell in the picture). Continued prayers on his and your behalf.

Snippety Gibbet said...

He looks like a doll baby in those photos. Again, he is a perfect cross between you and the mister.

Your little one is in my prayers.

jan

nweames said...

Reuben is so cute, I can't wait until we can see him in person. Love those outfits, Sally is amazing, as usual! My prayers are with your family always and hope your choice is clear and you have peace.

ahs said...

oh val, we pray for your family! reuben is such a sweetheart in every picture.

you and nathan are amazing.

Kathi D said...

He is the most precious boy!

I pray for clear answers and good news, always.

cfm said...

poo on cancer...i can't even come up with something clever or nice or hopeful... tears...but he does have the sweetest smile in the whole world...is it easy...no...is it worth it?